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News & Politics 179

Insight, analysis and expert debate as key policy makers are challenged on the latest news stories. From BBC Radio 4's Today programme

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Father and daughter describe 'miracle' of cystic fibrosis drug

June 17th, 2016

Episode 1028 of 1342 episodes

Over 2700 people in England may be affected if health watchdog NICE decide not to approve a "breakthrough" treatment for people with cystic fibrosis for use on the NHS. The drug Orkambi, which costs 104,000 a year per patient, has been shown to improve lung function and respiratory symptoms in people with cystic fibrosis, but NICE said the benefits were modest. Fourteen-year-old Clara Mann, who has cystic fibrosis, and her father Nicholas Mann discuss the benefits the drug has had on her life. (Image: Child with nurse. Credit: SPL)

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